Friday, October 17, 2014

1 year Stemmie Day

Yesterday was my 1 year Birthday/Stemmie Day. Just want to thank my family and friends who helped me get my Stem Cell Transplant to get rid of my MS/CIDP. I will always be grateful to you. This a new treatment to treat autoimmune diseases, it the same treatment they use for some cancers. HSCT is like Bone Marrow Transplant, but you use your own stem cells to restart your immune system. Some knew how bad I was, let's just say a wheelchair was right around the corner for me.

Thanks to Dr. Burt, I see a future again

Thursday, September 11, 2014

One Year Checkup

Well I came back from my 1 year check up last.
First I met with Dr. Burt,  and as I was walking in to the exam room (yes I said WALKING), I walked past Dr. Burt. When he came in the room he asked "what's new". I said I'm walking. He said "yes you are". He was very happy with my progress.
The next day was labs the the tube or MRI. I was stuffed in that tube for 3 1/2 hours. Day 3 was the EMG. Bad thing was it really hurt, good thing it really hurt. I felt that I had more feeling than 6 months ago. The doctor giving the EMG said it look better than last time.  The last day was with the neurologist Dr. Allen,  he told me the lesions I had during the evaluation were gone or almost gone.
So all in all, it was a good visit.

Today Paula called me to go over my visit.  She said Dr. Burt was very happy with my progression, the she said


Sunday, July 13, 2014

Back to the pool

Well they had me back in the rehab pool Friday.  During my OT session, the second part of it, she decided to use the pool for a half hour since it was unused. I was scheduled to be in the pool for PT. So I was in the pool for a total of 1.5hrs.
The bottom of the pool is a treadmill.  So I walked forward, backwards, and side to side. Also did some stair stepping,  then worked on my balance.  Needless to say, I gave my legs a workout.
The cool thing about the pool is, the bottom raises up and down.  Makes it easy to get in and out. Unless your legs aren't use to working out that long. So as the bottom raises and gravity returns.  Standing there holding on to the rail, you feel you weight return, and we'll,  my right leg was tired and didn't want to work and I had to sit down.
Thought I just need to rest a bit,  but that didn't work, still kept giving out on me.
When we work my legs I alway joke that I needed a wheelchair,  but this time I needed one.
After getting dressed, they wheeled me out to the car and got me in. Once at home I had to bust out the walker to get me in the house. It took about 2 hrs to regain my strength back. To my surprise, I wasn't a sore as I thought I was going to be. Go back for more Monday.

Monday, June 23, 2014

AFO Braces

Today was a good day at rehab. Today I walked without my AFO Braces and no walking stick!
Just me and no help from anything, well maybe a wall here and there.
First to laps where barefooted,  then with my shoes.
Stronger today than yesterday. I will not let this beat me.

Tuesday, June 17, 2014

Rehab Pool

PT was different today, today they had me in the rehab pool.
I was a bit worried how I was going to get in and out of it. Well it was easy, she click a button and up came the pool floor. Then I held on to the hand rail, then click of a button, down went the floor.
The other cool thing about this pool, the bottom of the pool is a treadmill. I got to practice walking normal without the threat of falling. Then working with water weights to strengthen my core. Diffently going to schedule more of those sessions.
Now that I can be back in the sun, man I need a tan.

Wednesday, April 16, 2014

Its been 6 months!

It has been 6 months since my HSCT. Each day I feel stronger than the day before. I am so glad I decided I did this treatment for my CIDP/MS. I am so blessed to have family and friends who have supported and been there for me. I have come a long way, and a long way to go, but with all the thoughts and prayers behind me I will be there in no time.

Tuesday, March 18, 2014

6 month followup

I went to Chicago for my 6 month followup, and the Doctors were happy with the improvements they saw. It was a good visit.
With more PT and OT, I'll be back on my feet in no time.